Healthcare Advocacy in D.C.

Well, I went to The Hill.
The Crohn’s and Colitis Foundation asked if I would, so I said, “OF COURSE!!!”

My professors were kind enough to let me get finals out of the way early so I could go make noise on Capitol Hill for a couple of bills:

1. The Medical Nutrition Equity Act H.R. 2501: Currently, health insurance in America will cover medical foods as long as they’re inserted through a nasogastric (NG) feeding tube, even if there’s no clinical indication for insertion of an NG tube. We need these medical foods covered orally! Medical foods are NOT groceries…that seems to be the consensus on The Hill, and I had to explain from the position as a future registered dietitian:
– Medical foods are broken down into single amino acids, digestible monosaccharides (single sugar components) and lipids, so the body can absorb them easier. These are especially important in patients who are malnourished.
-Medical foods are important, especially in pediatric patients, to prevent or prolong the need for more expensive/potent medications.

2. The Safe Step Act H.R. 2279: There are laws in 25 states currently that protect patients, but not in Oklahoma where I live. In Oklahoma and states like it in this respect, insurance requires patients to first fail a medication before they can then be prescribed a medication that would be helpful. However, there’s no burden of responsibility on the insurance companies to review the appeals process submitted by the doctor stating that the patient is failing a drug. This could mean up to 6 months time would pass before a patient finally receives permission from the insurance company to try a new drug. I experienced this firsthand in Oklahoma last year:
– My drug of 6 years, remicade, began failing me because my body developed antibodies to it since my doctor repeatedly forgot to write the order for it, delaying the time between infusions of remicade.
-I “failed” the drug, meaning I began to experience uncontrollable symptoms. I was told that it would take “several months” before insurance would approve another drug. I was missing work and knew I didn’t have “several months”. Literally, I was scared that I would die. I was violently losing blood 30 times daily, losing weight, and I couldn’t stay hydrated. I was hospitalized twice last year because of issues associated with failing remicade.
-I moved my care to Texas, which is a 6 hour round-trip ordeal for me to receive treatment. Because Texas has laws in place that protect patients, I was able to get my infusiong within 72 hours of finding my new GI doctor in Dallas. When insurance acknowledged that I was “failing” remicade, I was able to get on a new treatment within 48 hours of the doctor submitting an appeal to insurance.

The Safe Step Act would require insurance to make timely decisions so patients could receive the treatment they need as prescribed by their doctor, potentially avoiding missed time from work, loss of employment, surgery, hospitalizations, or even death (in extreme cases). The Safe Step Act saves healthcare dollars and lives!

A local GI doctor (George) and I spoke with the staffers for Senator Inhofe and Congresswoman Horn from Oklahoma, and then we met up with friends from New York and Kansas (Sarah and Tyler) to speak with Congresswoman Davids and Senator Roberts from Kansas (side note: Kansans are truly some of the kindest people I have ever met). Our goal was to get co-sponsors for these bills so we can make them into laws, bettering the lives of IBD patients and beyond. Most, but not all, of the legislators were receptive and even supportive! Contrary to what we see/hear in the media, Republicans and Democrats CAN agree on some things, and since these bills are bi-partisan, that made this whole, “please support these bills” requests much easier.

I saw Congresswoman Alexandria Ocasio-Cortez from New York from afar- SO exciting to see women MY AGE in Congress! I also saw Senator Ted Cruz from Texas about 127 times.

Between our meetings, we grabbed lunch underground at a cafeteria and waltzed over to the U.S. Botanical Gardens for some peace and quiet from the hustle and bustle. Shout out to Sarah from NY for knowing D.C. like the back of her hand, because I felt like we had a tour-guide, and this was a gem:

Since the 20 days that have passed since meeting with legislators, we have gained 22 co-sponsors for The Safe Step act. I sent another follow-up email to some staffers today, and we are actively seeking more support.

If you’re interested in these bills above and want to make noise where you are, email your representative and ask them to co-sponsor the above bills. Tell your story, and let them know how these bills would help you. These bills are currently both on the House of Representatives side, but we will have Senate call to action soon!

I’m learning that advocacy is so, so important. If you’re affected poorly by the systems in place, we can make a change…but we need to tell our stories. Lawmakers need to know how we can change our world, and advocacy is the perfect space to not only let people in positions of power see how we need change, but also to offer a solution through these bi-partisan bills.

Keep moving forward!

Not pictured: coffee shops, crab cakes with my friend Hope, riding bikes through a thunder storm, touristy monuments, and a cocktail reception with new friends

P.S. If YOU want to support medical research directly, please consider donating to my fundraiser here!



So…You Want to Be a Registered Dietitian Nutritionist?

Happy National Nutrition Month! MARCH! Can it feel like Spring, already? To commence National Nutrition Month, I’m sharing some things about a profession I’m pretty stoked about: nutrition! Scroll down for more.

H O W

How to become a Registered Dietitian Nutritionists (RDN)? What is an RDN?

An RDN is a food and nutrition expert who has successfully completed:
– a bachelor’s degree
– prerequisite coursework for a DPD or CP
– 1200 hours of supervised practice (dietetic internship)
– a national credentialing exam

There are a number of routes to becoming an RDN, but here’s the route I took/ am currently taking:
bachelor’s degree: check! B.A. in Sociology- note: the bachelor’s does NOT have to be in the field of nutrition, because beginning in 2024, a master’s will be required to sit for the credentialing exam.
– I worked full-time and took the prerequisites simultaneously, because I could not afford to up and quit my job. I took biochemistry, organic chemistry, chemistry 2 with the lab component, and nutrition through the lifespan one.semester.at.a.time. It took 5-ever, but I am told that it will be worth it. Plus, I didn’t accumulate additional debt from paying on a course or two at a time. Bonus: If you work for a hospital, a lot of them will pay for the prerequisites!  Look into their tuition-reimbursement programs and see!
-I enrolled in a Didactic Program in Dietetics (DPD). A DPD is ONLY the coursework component to become a dietitian- not the internship. Think of the DPD as step 2 in the process after completion of prerequisites. I FULLY planned on working and going to school simultaneously like I had been doing, and then I was planning to apply for a dietetic internship (DI) later. Thankfully, I moved to a town with a Coordinated Program (CP) that combines the internship with the classwork.
-I’m currently completing the CP, and when it’s all done, I’ll have all my supervised practice AND some graduate degrees under my belt. Once I graduate, then I am eligible to sit for the CDR credentialing exam. Some states require additional licensure to be a licensed dietitian to practice (LD).

I wanted to be credentialed- that was important to me, because in order to work for the World Health Organization, hospitals, and community programs like WIC, even NASA…they require that RDN credential. Without the credential, the future seemed uncertain and volatile to me. If credentialing isn’t important, I suggest checking out programs in integrative nutrition. However, I don’t know if “nutritionist” will always be an option without pursuing the credential. Many people are advocating for the “nutritionist” title to be protected through the RDN credential, which can only be attained via the steps I listed at the top of this post. What I’m saying is, all dietitians are nutritionists, but not all nutritionists are dietitians…make sense?

What does an RDN do?
Where are they?

Glad you asked! They work anywhere and everywhere! In gyms, hospitals, schools, corporate wellness, for NFL, the NHL, MLB teams, the Olympics, collegiate sports teams, community programs, in education/academia, for the NIH, the WHO, for THEMSELVES in private practice, in the media, and beyond. RDNs provide individualized, evidence-based nutritional counseling and medical nutrition therapy (MNT). RDNs take a scientific approach to health maintenance and prevention. RDNs can even join practice groups (DPG) and gain field-specific knowledge in areas like pediatrics, diabetes, integrative and functional medicine, culinary arts, and environmental hunger. Dietitians can even become board certified in sports nutrition, pediatrics, clinical nutrition, oncology, diabetes, and more!

^Texas Medical Center in Houston

What excites me about the field of nutrition?

I think there’s room for entrepreneurship and growth in the nutrition field. People are more interested in nutrition and disease prevention than ever, and the job growth for this field is exciting. I like the idea of piece-mealing a career that’s rooted in science, helpful for others in areas like counseling and education, and practical. There’s constantly new research being published to keep up with, and the science nerd in me loves that. I like that the field doesn’t have to be rigidly structured and black and white- there’s room for flexibility in nutrition…and I’m excited to see what that looks like in my own life as a professional.



Friendly Reminder about Healing

Healing is.not.linear.

I have learned this with ups and downs of life with a chronic disease.
But this is especially difficult for me to remember with my mental health.

I struggle with anxiety and depression, and I’m currently wading through it with help from a number of healthcare professionals, people who support me, and the #1 role-player…myself!

I woke up a couple of days this week in a fog, sad, heavy…which is counter to my normal, healthy, chipper self. But I’m not apologizing for these bad days, and I’m taking them in stride, going to therapy, journaling, soul-searching, moving my body when I need to, being still when I need to, feeling all the feels, and not feeling bad for the bad days.

Growing up, I carried such guilt when I had a bad day, and my coping mechanism was pretending that everything was finnnnnne and grrrrrreat. I now know that I don’t owe anyone an apology for a bad day, not even myself.

I guess what I’m saying is- give yourself grace, because I’m working on giving myself grace:
-when I KNOW I’ve done everything to feel better; given myself the right amount of sleep, food, #self-care, and I still don’t feel better
-in the thick of it, in my lowest low, feeling like it will never pass. spoiler alert: it will- it’ll wash over
-when I’m panicked for no reason/ when I’m panicked for a real reason
-when I’m tired, weary, and downright depleated
-when I don’t accomplish everything…or anything on my to-do list

Healing is the ups, the downs, the peaks, valleys, rough parts, ins, outs, and all the in-between. But it’s the good stuff, too. I’d like to think the lowest lows help us feel the highest highs with even more intensity and gratitude.

I want to be a sure, steady shoreline that can take on storms, and allow them to wash over. I watch the tide take the storms away, and when they come back, I’m still the shoreline, only this time- I can stand in the storm from a different vantage point from before, because I’m still the shore.
Is that cheesy?
I’m a cheese-ball, yall. I don’t care- this works for me, okay?

And remember- you’re never alone. People are healing all around you, including me.




Weekend 5K & Being an Imperfect Intuitive Eater

Hi, Friends!

Coming at ‘cha from the hospital break room at work today. If my photos are unusually ugly and my grammar is especially nightmarish, we are gonna still be friends, okay? Good. Real life:


Hope your weekend was restful and left you feeling rejuvenated! I went to (surprise, surprise) Dallas…again.


Our cousin, Chance, came into town, and we ran a 5K- his first ever race! He’s mostly a weight-lifter, but has recently been adding running to his workouts and is pumped about the mental clarity and energy it has given him (his words, not mine!). No matter the reason, I’m so stoked to have a new running partner!!

This was a FUN race at Fair Park, home of the State Fair of Texas and the Red River Rivalry between The University of Texas (hook ‘Em!) and OU.


I actually lost Chance before we even made it to the starting line (FAIL)…so we didn’t run the race together at all. I did find him on the course though, and I was able to wave from afar!


Just a cool course! Highly recommend both the Rock ‘n Roll Dallas 5K AND Half-Marathon. I’ve done them both, and they’re some of my very favorite courses.

We grabbed some post-run salsa-filled, Tex-Mex breakfast skillets at our new favorite- Victor Hugo’s on the patio and then headed out for more adventure at White Rock Lake.


Sophie is basically a famous little Dallas dog with the sweetest personality. We made frequent stops around the lake for Sophie to greet random admirers.


We had dinner at Saint Rocco’s Italian outside on the patio, and we loved the atmosphere, complete with delicious merlot and spicy shrimp scampi…but the small portion sizes left us feeling bummed. I do recommend for a fun date spot with a view of the city, though!

We ended the night watching Amazon’s “Sneaky Pete” and sharing cheesecakes from Eatzi’s. All around, a perfect weekend!


I’ve been learning more about Intuitive Eating (read the book awhile ago, and I wasn’t at a place in life to be receptive). Basically, I’ve been focusing on eating without stressing about food…because it’s just food at the end of the day, and food is nourishing. Letting go of the diet mentality has been challenging (e.g. not beating myself up over delicious cheesecake, but rather ENJOYING the mess out of it, savoring each bite, because I don’t eat dessert or dairy often, and it just tastes good regardless of any justification).

Part of intuitive eating and letting go of the diet mentality is realizing that diets DO NOT work for long-term weight loss (disclaimer: I have not YET had a class on weight loss in my nutrition education, nor have I personally ever dieted for weight loss, so I do not feel that I can confidently comment on dieting specifically for weight loss goals, but I will say: if dieting gives you structure, and you feel healthy mentally, and you’re feeling nourished and strong- GO FOR IT. But choose a diet that is sustainable and inclusive of fruits, veggies, and all the macronutrients that keep our bodies the capable, strong beings that they are!).

If I’m being honest- I struggle with the negative stigma surrounding diet mentality. Actually-I can’t subscribe to the “diets are bad” mentality, and here’s why: my personal experience(s) with doing the Whole30.

I did the Whole30 to eliminate foods that could cause inflammation, and since I have an inflammatory disease, I was looking only for non-scale victories: more energy, less frequent poop attacks (explicit version included-you’re welcome), and more painless, restful nights. Did I accomplish this in 30 days? Heck yes I did. However-I did NOT weigh myself before, during, or after the program (fun fact: I do not own a scale). After the re-introductory phase, I did not stay on Whole30 for life because that’s NOT how it is intended, and I refused to give binary labels to food such as “legumes are bad” because THEY ARE NOT, and if you walked away from the Whole30 with that mentality, you missed the point.

As an IBD patient who is chronically trying to navigate this chronic, autoimmune disease (ulcerative colitis)- I try to include as much variety in my diet as possible. Including- I drink alcohol on celebratory occasions. Hell, I even have cheesecake (even though there are rough consequences for dairy desserts for me), but I DO NOT feel bad/guilty/sad about any of it, because I really do feel like I have learned how to enjoy food for being food. However, I do not appreciate the damning of diets- simply because diets DO work for some people, and certain populations REALLY need diets (e.g. the Mediterranean diet has documented successes on heart health; ketogenic in treatment of epilepsy; renal diets for kidney failure patients; avoidance/inclusion of certain foods for IBD patients; gluten avoidance for Celiac patients, and the list goes on).

I’m just a girl trying to work her way though nutrition school, healing my gut intuitively, sometimes with a little help from the Whole30, or low FODMAPs, or another science-based elimination DIETS to figure out what THE HELL to feed my stubborn gut to make it heal. There are situations when intuition isn’t enough, and maybe that’s because Crohn’s/ulcerative colitis patients aren’t part of the general population.  We are just a little bit extra. 

Does all this make me an intuitive eater failure? Hey- I’m a work in progress.
I’m educated AF, and I’m here to learn, even if I’m not perfect; This bite of cheesecake sure is.


Ulcerative Colitis: 5 Years Later

Happy November!

Is this the fastest year ever for anyone else? Just me? It’s flying by in a hurry!

I realized today that it has been five whole years since my ulcerative colitis diagnosis– woo! So much has changed in the last five years, and today I’m making a post about five obstacles that I have overcome and you can, too! But first, here’s a timeline of all the significant moments of life in and around an ulcerative colitis diagnosis:

-September 2012: Began experiencing severe symptoms (x-rated version: bloody stools 30x daily, loss of appetite, quick weight loss, fatigue, night sweats) 

-October 2012: Diagnosed with “moderate to severe ulcerative colitis”- began remicade infusions, pain medications, steroids, and mesalamines to get symptoms under control

-January 2013: Tried stopping all medications and healing with holistic approach (without doctor’s permission) Stupid, stupid, stupid

-April 2013: Hospital stay for dehydration due to symptoms; back on remicade infusions every 8 weeks with steroids. Decided to stop eating red meat, fried food, processed meats, and cheese

-December 2013: GRADUATED from The University of Texas at Austin, despite pleas from family to take a medical leave of absence. My GPA even improved after a diagnosis.

-March 2014: First post-grad job, a night shift at a Houston hospital. Here is where I learned that I did not want to be a nurse but instead decided to pursue dietetics. I declined my acceptance to a post-bachelor’s nursing program and began scoping out dietetics programs.

-June 2014: 2nd colonoscopy revealed active and increased inflammation; diagnosis modified to “Crohn’s disease”; removed from night shift schedule and increased dosage of steroids

-March 2015: Registered to run first half-marathon and fundraise for cures to Crohn’s and ulcerative colitis; began talking publicly on social media about disease and realized that I could help encourage people through my journey with a challenging diagnosis. 

-July 2015: Completed first half-marathon in Sonoma, California after fundraising over $3,900 for Crohn’s and UC research

-February 2016: Completed second half-marathon in New Orleans after fundraising over $2,500 for Crohn’s and UC research

-May 2016: OFF STEROIDS! 

-July 2016: ENGAGED! 

-August-December 2016: “Is remicade working?”

-January 2017: WEDDING!

-February 2017: 3rd colonoscopy confirms “ulcerative colitis” diagnosis, but with significantly less inflammation

-May 2017: REMISSION! 

-October 2017: 5 years of ulcerative colitis diagnosis

Much has happened in the last five years, and I get bummed when I live through an experience and think, “why didn’t anyone tell me about this?!” which is why I [probably] tend to overshare on social media-you’re welcome. I believe that leaning into the vulnerability of real life challenges and sharing the experience with others helps create a community of empowerment. My life isn’t filled with bright, celestial light and like-it-to-know it worthy outfits (currently sporting dirty high-top converse and yoga pants); my life is peaks and valleys, a balancing act of chasing chocolate chip cookies with probiotic green juice and just trying to stay the eff in remission while I navigate life as a normal twenty-something year old newlywed while remaining a girl boss in organic chemistry. My life is far too much to pretend that it’s instaperfect.

Okay, I’ll stop rambling. Here’s five obstacles that I have overcome with ulcerative colitis:

1. Fear of pain. I remember freaking out as a child every time my mom would take me to the dentist, “Will it hurt?!” Grown adults still ask me this about colonoscopies

(No, Debra, you’ll be fine).

I honestly go into procedures/infusions now knowing that at some point I WILL feel discomfort, possibly even pain, and I don’t even care. Pain is temporary, even if it doesn’t feel that way. P.S. The most painful part of the infusion is the end, when the nurse takes the tape off. Think of it as a nice little wax job.

 

2. Fear of needles. Before UC, I would get so nervous to have by blood drawn annually at my physical check-up. One time I almost passed out. But I realized quickly that I would be seeing a lot of needles after my diagnosis, and I needed to woman-up and get brave. Now I can look at needles all day long- no problem. I don’t even care if the nurse has to try four times before hitting a vein, that looks like hard work anyway.

Pro tip: If you ARE afraid of needles, don’t look at the needle when your nurse is trying to thread it, because this triggers a fight-or-fight response from your sympathetic nervous system and your veins vasoconstrict, making life more difficult for you AND your nurse. Also be sure to hydrate well the day BEFORE a procedure so your veins are happy, plump and hydrated.

3. Being my own advocate. If you know me, you know that I have a soft voice, AND I have a resting nice face which means that everyone smiles at me all.the.time. Strangers frequently strike up a conversation, like we’re old friends. My naturally semi-extroverted self is STOKED to have these encounters, but because I LOOK so.damn.friendly. it’s a real challenge for people to take me seriously. When the nurse says “let me check on the order for your medication” I take notes of who I spoke to, when I spoke to them, and then I call back later that day to make sure that homegirl actually checked on the order as promised. People get busy and forget, but my body isn’t going to forget that it needs an infusion to function. If I show up to an infusion appointment only to find out that an order had never been written and insurance had never been contacted for prior-authorization, I WILL craft an email to the head of the infusion center, call my doctor, or show up in person with an order ready for him to fill out and sign. Whatever it takes, I leave my dignity at the door, and I fight. It’s too easy to get lost in our American Healthcare System, so go to bat for yourself. Take good notes, talk to understanding people, and make your case sound.

4. Hair loss. Many, many people experience hair loss; it’s just part of life. I could write an entire post dedicated to “How to make your hair healthy after you’ve been REALLY nutrient depleted and it thins and falls out and breaks off in clumps and makes you cry really hard in the shower but it’s going to be okay, Stacey- IT’S GOING TO BE OKAY. YOU’RE OKAY.” Honestly, hair loss was a tough little challenge for me, and friends and family members were so kind about it “I can hardly notice”. My older sister bought me expensive, old man hair growth shampoo- bless her. But to me, hair loss was an outward expression of how desperately unhealthy I was on the inside, and it was hard to wash my hair knowing that I had balding spots, and I could feel it thinning by the handful. In retrospect, it could’ve been so much worse. I wasn’t bald! Let’s review:

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Ten months before UC diagnosis

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One year after my diagnosis. I started parting my hair on the opposite side and got bangs to hide a bald spot. It worked!

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Three years post-diagnosis. I remember loving this picture because my hair looked like it was growing, even though it was wispy and thin compared to before my diagnosis, I knew I was getting much healthier!

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Five years post-diagnosis. I’ve never been this healthy, and I think my hair agrees. *flips hair*

5. Health is comprehensive. Being healthy has been another challenge, but I FINALLY feel like I’m getting it down. In college I stressed and slaved so hard over science courses to get into nursing school, and I sacrificed quality sleep and my diet suffered (but isn’t that the tale of so many college students?)

Post-grad I learned that I felt better when I was physically active, and I started sleeping more. I now feel like I’m balancing sleep, productivity, physical movement, spirituality, and time with people I love better, and each facet is an integral part of overall health. Taking care of myself is getting easier. Three cheers for adulting!

If you’re dealing with a diagnosis, managing a disease, or you just feel like you have a one-way ticket to Struggle City, USA, know that I’m here to help you feel like you’re doing a thing, and you’re doing it better than you think. Life is a continuum of learning, and if we can manage to learn together…well, I’d say we’re doing something right.

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5 years, 40 pounds, and a crap ton of life lessons in between. Pun intended…

Here’s to five years of learning and living! Hope your day is a good one! 🙂

-Stacey


This is The Remix to Remission

Hi, friends! Hope you’re having a great Wednesday!

I’ve been seeing a lot of encouraging posts from my friends on Instagram along the lines of, “Keep persevering! The good stuff is right around the corner.” And “I hated the first hard four miles of my run today, but I kept enduring, and by mile five I felt rejuvenated.” These have been especially uplifting to me, because sometimes I feel like I’m aimlessly floundering, but I think I really needed to hear, “Keep it up.” It’s so easy to feel uninspired or beaten down by our own critical thoughts, but these “atta girls” really helped put a pep in my step. I’m not even sure what “pep in my step” means, but they made me feel good. Okay. Moving on.

Recently…

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…we made friends with the neighbors. Meet Kitty (aka “Minnie the Moocher”). We think she was abandoned. I took her to the vet to ensure she wasn’t microchipped (she wasn’t), and I called every shelter in town to see if an orange pretty kitty had been reported missing (she hadn’t), and then I harassed all my friends and family to see if they’d keep her (they wouldn’t), so I got really sad, and Zack and I took her to a [NO-KILL] shelter today.

She is incredibly friendly and always wants us to bring her inside (we never caved). She follows us from room to room by sitting on our outdoor window sills. But tonight we have a blast of below freezing temps headed our way, so we hope we are giving her the promise of a better life by taking her to a shelter. I’m sad that we aren’t allowed to have animals with our lease (other than Jaxon, who only won his way into the lease by me labeling him as a “deaf, furry goldfish”).

I’m so thankful to have met Kitty, though. We didn’t think we were cat people. Now we have labeled ourselves as “Animal People”. I hope she finds a loving home!

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Jaxon is ready for the cold front.

In other news I started a low FODMAPs elimination diet recommended by my GI doc.

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Shoutout to grill master Zack who grilled these sweet potato fries and venison “burgers”. They were good.

About two years after my diagnosis I began researching and learning about which foods trigger my symptoms and add to inflammation, and incorporating more fibrous foods, fruits rich in phytochemicals and antioxidants (e.g. blueberries), and healthy fats (e.g. avocado and salmon) in my diet. Somewhere along my journey I lost focus a bit, and I’ve been eating “whatever” lately because I don’t understand my changing triggers and symptoms, and to be honest, I just got tired.

But I have an inflammatory bowel disease (Crohn’s). I can’t keep eating foods (e.g. sugar, salt) that trigger inflammation –> symptoms. About 80% of the immune system is IN your gut (large and small intestines), so try to eat well, even it you are completely healthy! So here I am, fueling well again.

My ultimate goals for this year: Remission and increase in energy levels.

Even if I don’t reach remission, I don’t want it to be my fault. I don’t want it to be my own lack of discipline and giving into my own cravings that prevents me from remission. I’m going to fight for it again. Today, that looks like low FODMAPs. In six weeks, I hope to know which grains and sugars are specific triggers.

I should also add that I DO NOT believe in dieting to lose weight. Hopping on a trend, and then catapulting off into unhealthy eating habits doesn’t make sense to me. Learning is critical to incorporate healthy, lifelong habits, indulging when it’s okay (without beating yourself up), and then making conscious efforts to maintain a balanced diet most of the time. I think dieting messes with one’s psyche and cultivates an unhealthy relationship with food, which can even lead to metabolism problems later in life if you’re calorie restricting without supervision from a dietitian or doctor. Okay, jumping off my soapbox now.

I think the lesson for me that is to be learned today is that it’s okay that I got frustrated (and at times even let Crohn’s get the best of me), because I’m persevering. I’m sticking to my list of foods from the doc, and I’m not compromising (no matter how loud Nestle Tollhouse chocolate lovers cookie dough calls my name that time of the month). I’m learning through this challenge, and I know I’ll come out stronger…and hopefully smarter.

Keep moving forward. 🙂

-Stacey

Are you a dog or a cat person? An animal person? Any low FODMAPs advice?


How to Start Running in 4 Easy Steps

Have you ever thought, “I’d really like to run, but there’s no way I can run __ miles.” OR “I used to run all the time! But I haven’t in forever.”?

Fear not, I’m here for ya. Solidarity.

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When I started running my longest distance was a 5k obstacle race that I basically walked with my kind, patient runner roommate back in college, and that was a good four years before I decided to lace up with effort. In high school, I was a baton twirler who avoided running like the plague, so you get my drift. Not. A. Runner. SO from a non-runner turned runner, the BEST advice I can give to someone who wants to start running for fun, for distance, for whatever your motivation is:

1. Start running, and run outside. Find a little neighborhood that you wish was yours if you’re like me and you live in the scary as shit inner city. Find a park, run around the street, go to an old high school track and run bleachers. Wherever makes you a happy, go there and put one foot in front of the other, but DO NOT run on a treadmill if you hate treadmills. Get outside, friend.

2. Set attainable goals, especially with running. Don’t lace up and expect to be the next Usain Bolt, and don’t lace up on your very first run thinking, “Five miles, baby. No stopping.”
NO, SILLY!
Setting distance goals are AMBITIOUS AND WONDERFUL, but start small and work from there. Don’t hurt yourself-that will NOT help you learn to love running! If you’re running and you find yourself struggling to keep moving, set an even smaller, realistic goal like “I’m going to make it to the sign by that tree, and then I’ll walk for one minute.” Next time you run that route, I’ll bet you make it past the sign by the tree.

3. Probably most importantly, FIND GOOD RUNNING SHOES (and socks when you go longer). When I started running, I knew nothing. TMI, but my toenails soon turned black and were threatening to fall off, because apparently my hot pink Asics were too small. Oops. Evidently it’s not good to run in the same size shoe you normally wear for fashion. Go to a running specialty shop and ask to be fitted; you won’t regret it. (Favorites in Texas: Luke’s Locker)

4. Be kind to yourself, and be patient for results. Some runs are going to suck, and others you’ll feel the full effects of the “runner’s high”. Sometimes you’ll probably hate running, but I promise if you stick with it, you will learn to appreciate what your body can do with just a little bit of time and consistency.

P.S. If you can find a community or friends to run with, it is SO.MUCH.EASIER. to not give up. If not, invite your friends to support you at the finish line after your training has paid off 🙂

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^ View from my run on Sunday’s “fall” Houston weather. No Garmin, no gadgets, and no headphones for this one. Just me, my two feet, and a beautiful afternoon = bliss.

Keep moving forward!

-Stacey


Warrior Wednesdays

Hope everyone had a great Wednesday. I like to call these days, “Warrior Wednesdays”. They only come every six weeks/ every time the Crohn’s starts knocking at the door, and they’re infusion days.

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How I make Warrior Wednesdays not suck even though I’m strapped to an IV pole for hours: Naps. OH. And Pizza. Specifically, Pink’s (In Austin it was HomeSlice) or the cheap frozen kind from Trader Jo’s which is surprisingly delicious. I’m gonna feel gross and sleepy after the infusion anyway, so I may as well eat some greasy, bad comfort food. Warrior Wednesdays have been dubbed, “Pizza Day” by my close friends and family. Today I added cupcakes while I watched Usain Bolt and the Canadian guy blaze right into the finals. Normally I binge watch Gilmore Girls before/after napping. No shame.

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Also, friendly reminder to be kind to yourself. Less weight often isn’t equivalent to greater health. When I’m running a lot, I also eat a lot. I have muscle, which weighs much more than fat. I was 124 lbs at this infusion, down nine pounds since my last infusion-no bueno. What changed? I basically stopped physical activity and slowed eating. When I do eat, I haven’t been fueling with sufficient protein, healthy fats, or carbs. I eat whatever doesn’t nauseate me, e.g. plain cheerios (my inner dietetics student is cringing at myself). I’ve allowed myself to be consumed by stress. BUT I am really, really working on stress management. Oh-I hear actions speak louder, so. Here we go, life.
Stay tuned.

Keep moving forward 🙂 (even if you have to take some time to slow down and work through stress and life. That’s cool. But pick yourself up, get it togetha’. And then, one foot in front of the other. The world needs ya bad)