You may have noticed a few cosmetic changes on the blog (or not)- I’m working on creating a cohesive brand, and I’m an all-over-the-place kind of person, so please bear with me!
A few major things have happened since we last chatted. I’m going to start sharing blog posts more consistently now that I feel that I’m in the right headspace/ schedule to do so, and I’m pumped about it. For now, I’m going to catch you up on my life stuff.
Grad school acceptance. Ya girl is finally done with all the biochemistry and organic chemistry and gonna be a registered dietitian nutritionist…soon! This has been many years of behind-the-scenes work while holding full-time jobs, and I couldn’t be more thankful to be here! Classes start in August.
2. Another trip around the sun
And I am so grateful! My sister came to town for celebrations, and she brought my dog niece Sophie (pictured above)!
We went to brunch at Kitchen No. 324 here in Oklahoma City, and it didn’t disappoint.
I had the avocado toast, and it was so good that I felt it deserved a spotlight in this life update.
In 8 years of dating and 1.5 years of marriage, this is the FIRST summer that Zack and I are TOGETHER in the same house. WOW.
3 days of nonstop vomiting after an infusion resulted in a few days worth of electrolytes in the hospital. Not pictured: emergency colonoscopy (glamorous), which resulted in a Crohn’s? diagnosis, as opposed to ulcerative colitis. Not entirely sure though. Good news: Scope showed that I am CLOSE to remission again; there’s hope! On another positive note, this hospital stay was the most consecutive time that Zack and I had spent together probably since our honeymoon, which was nice despite the circumstances. Life is crazy.
4. Consistent movement: Since my hospitalization, I laced up and ran a 5K just because it felt good. Not pictured: yoga and barre a few times weekly, which keep me grounded during the crazy work weeks in the trauma O.R.
(Sidenote: I had an epiphany that I may not want to work full time as a clinical dietitian after all)
I looked back at a ton of my old posts this weekend, thankful for the progress that I have made in a couple of years. I harped, “Doing is better than dreaming” and “Actions speak louder than words” and “You may not feel like moving, but keep moving forward” and A LOT of times, these words were written for myself as I sat paralyzed by anxiety from my couch. Since January, I haven’t stopped running/yoga/barre/moving, including walking the dog a few times weekly- even when I haven’t felt like it, just because I’d rather be out in the world uncomfortable (and often anxious) than sitting at home wishing I was out moving and shaking. I’m getting more comfortable with being uncomfortable, and I’m living a full life that resembles the life I actually picture having for myself. If you’re battling anxiety, know that you WILL learn to tame that dragon; just give it time. I’m no therapist, but doing new things, and doing things that make me uncomfortable have empowered me.
5. Crohn’s and Colitis Advocacy.
Still fighting! I’m meeting soon with a state rep about the allocation of federal funding in an attempt to offer a patient’s perspective of “Hi, this sucks and we need to do better because we can.” With the help of the Crohn’s and Colitis Foundation, I’ll also be leading a much-needed adult IBD support group here in OKC. We are still working through the logistics, but we are looking for things to kick off in September.
Thanks for hanging in there with me, friends!
I’m so stoked to have the support that I have!!! I am creating useful, good things to leave you feeling less hangry and more amazeballs, and I can’t wait to share it all…very soon.
Hope you’ve had a great week! Happy FRIDAY! I’m writing from the cutest coffee shop that I’ve ever visited, Murray Street Coffee in Dallas.
This place feels very neighborhoody with a bohemian/Scandanavian flair, but I was greeted by a barista who affectionately called me “darlin'”. Still in Texas. If you’re in the mood for some warm coffee on a nice day and happen to find yourself near Deep Ellum in Dallas, come pay this place a visit.
This morning I had a check-up at the gastroenterologist in Dallas to review my blood work from the last few weeks. Things are looking great! I’m mildly severely anemic from this last flare up and will require iron infusions, and I couldn’t be more grateful to still be progressing. I know that healing isn’t linear (my gawd has that lesson been hard to learn over the years), but I’m thankful to have been able to keep doing the things I want to do: sleep, yoga, running, cooking, maintaining what little of a social life I do have. The life stuff has helped me heal.
Last weekend we drove to Dallas (seems to be a theme lately) for my sister’s 25th and celebrated her the best way we know how: with the dogs!
We went to E Bar for fajitas, margs, and queso (all of Lindsay’s favorites), and I instantly remembered why I love this place: They give EACH person at the table their OWN bowl of salsa. I eat salsa so furiously and with such intensity that I almost need to ask for my own salsa anyway. E Bar gets me.
Saturday we woke up and brunched (another Lindsay fave). We went to a highly rated bungalow called Johnson’s in Oak Cliff, but the wait was out the wazoo, and Victor Hugo’s was literally right next door with an open patio on a perfectly sunny day.
We made the right choice.
The brunch prices were reasonable; the food was delicious. I ordered a Mexican scramble thing with lots of spice and veggies under sunny-side-up eggs and ughhh so gooooooood. HIGHLY recommend Victor Hugo’s for their patio brunch on a sunny day; not sure why Dallas keeps re-visiting the crowded next door patio and leaving this place completely empty…but it really worked out in our favor!
Afterward we headed to Community Brewery for a tour and quality time spent at picnic tables with friends and pups. The beer here was so great! We hated it so much that will be back tomorrow morning for yoga.
^ I tried this red lentil pasta from Trader Joe’s this week, and it was great! I recommend! Lentils are an excellent source of protein and magnesium, and I’ve been trying to get more magnesium in my diet to help with muscle function and recovery since I have been moving more. I paired this with sautéed garlic, onion, mushrooms, and chicken, simmered with some red peppah and organic marinara, although the protein content in these bad boys is sufficient enough to not necessitate any animal protein with it. Easiest meal evahhhh.
I gotta keep this post short and sweet so I don’t get spanked by an upcoming biochemistry exam. Prayers and good juju are greatly appreciated. Don’t ask me how many times I’ve had to memorize the effing citric acid cycle- it’s a rough topic these days.
Hope you have a lovely, restful weekend, friends! Enjoy!
How on Earth have ya been?! I’ve been MIA, even through the holidays but not completely without good reason. Wanna catch up?
I started having a mega-flare around Thanksgiving thanks to my doctor’s office staff forgetting to send documents to the insurance company, resulting in the insurance company denying my remicade infusions (you know, the ones that my life literally depend on) and further delaying any forthcoming infusions.
The more time lapsed between infusions, life.got.real.
A trip to the ER for dehydration in January, and I learned that hospitals no longer even carry my infusion medication because of cost, so that killed my hopes and dreams of receiving an emergency infusion. Back on the steroids we go (kicking and screaming- if you’ve ever been on the ‘roids I know you understand!). I called the doc to update his staff on my change in medical status/recent trip to the ER/weight loss from crapping blood constantly (sorry-x-rated), and received a “what do you expect us to do for you?” response, which resulted in me finding another doctor in.a.hurry.
My new doc was furious about my exacerbated symptoms to say the least (we are starting over, from ground zero and it is a lot of time-intensive, hard work). She prescribed me more oral meds to help my body not reject the infusion since it has been so long without the medication. Within three business days, the new doc had my insurance giving the green light for infusions for the rest of the year. MIRACLES! Ya girl finally got an infusion, only a month past due. But I won’t be without any future infusions this year. PRAISE HANDS!
My new infusion center is located at my new doctor’s office in Dallas, three hours of a drive from where I live in OKC, but I don’t mind. My sister and best gal pal, Lindsay, lives in the Big D, so we make a fun sister weekend out of it. Here I am cuddling her dog Sophie while she’s at work, post-Remicade nap session and just after grabbing some juice from one of my Austin guilty pleasures in Dallas, Juiceland.
And if you know me, you know that infusion days= pizza days 🙂
We went to Oak Cliff for some delicious pizza at Eno’s which was the cutest little area I’ve seen in a while (disclaimer: not all of Oak Cliff is this picturesque, but it’s on the up and up). We grabbed our pie to-go because, well, symptoms got in the way. And then we headed home to watch a healthy dose of Grey’s Anatomy and hang out with Sophiedog.
The next rainy morning we went to a local barre class where we spent most of the hour huffing and puffing and laughing and feeling especially uncoordinated, then we headed to Mudsmith for post-workout coffee and conversation. I think Lindsay hated me a little for signing us up for barre (oops). Then I headed back to OKC for a biochemistry test.
Which about brings us up to speed for this week! We had our first ice storm since I moved her a year ago:
Y’all. I have never driven in ice. It was a big grown-up deal for ya girl.
But I made it to work and back home all week just like a pro!
And today I wore sandals and a tank top to yoga class, because it’s sixty degrees again and life is good!
I realize now that I should’ve allowed myself to be vulnerable and open during the depths of this past flare; it could’ve helped someone. When symptoms rage and I start to panic, I have a difficult time vocalizing and making sense of my thoughts. I even have somewhat of a guilty conscience for fear of sounding too negative and “debbie downer” but that’s real life! Chronic disease is a tough dragon to tame at times, but if you’re going through something similar, hang in there. Know that you may have to make sacrifices (e.g. sleep, meds, dietary changes, more exercise, eliminating stress, etc) but you and your health are worth it all.
I’m still not out of the woods; I am still fighting through symptoms, and if I think too much about where I’ve been and how it feels like I’ve taken three steps backward right now, I get bummed. But I’m not letting this flare get to me like the others, and I refuse to sit on my couch stagnant and sad (not that there’s anything wrong with that! Couches can be great for healing with a healthy dose of some Netflix, but it’s not what I need right now). For starters, I signed up for yoga (I’m really bad at it), but y’all, I LOVE it.
The facility also offers barre and pilates, and I find it’s just the right speed to make me stronger without feeling like I’m having a near-death experience while exercising. I’ve also started running again.
Self-timer took this pic after yesterday’s quick little one mile run because I felt strong. 9.56″ pace for a one mile up and down some little hills and over puddles of melted ice, and it was exactly what I needed. Starting from the bottom can be so scary and disheartening, but honestly. What is worse than being stuck at the bottom? Nothing. So I’m climbing my way up and up again, doing the things I love as often as I can, listening to my body, eating good food, trying new things, experimenting with new recipes, and finding joy in the journey.
Hope you’re finding joy in your journey, wherever you are! It’s so good to be back. xo
Hi, Friends! Hope y’all are having a wonderful week.
Today’s post is guest-written my friend and fellow UC warrior, Lizzy! She’s a recent first-time marathoner, and in case you were thinking about signing up for 26.2 miles, you get to hear firsthand advice and race recaps from a finisher of the New York City [freakin] Marathon today! So from one friend to another, here’s Lizzy :).
Oh- and if you can’t get enough of her, be sure to check out her blog HERE!
Hello, Internet Friends! My name is Lizzy, and I ran the New York City Marathon on November 5th. What?! It still feels so crazy whenever I say that out loud. I’m comin’ atcha today with my experience, things I learned, and key takeaways for those of you crazy enough to consider doing 26.2. Hopefully I can give y’all a little bit of a better idea about what to expect when training for a full marathon. Let’s dive in, shall we?
1. Why did you decide to run the NYC Marathon?
One of the biggest responses I faced when telling people I just wanted to do a full marathon (knowing I’m a slower runner) was “Well, why even run a marathon if you’re going to be out on the course for that long?” Fair enough. I’m a slow-poke runner. But, I actually chose to do the race for a special reason, that had nothing to do with my love for running. In 2014 I was diagnosed with Ulcerative Colitis. The diagnosis came after almost a year of questions, miserable symptoms, an incorrect Crohn’s Disease diagnosis, and four different doctors and specialists. Stacey shares a similar diagnosis to me, which is how we met originally. Getting diagnosed with a form of Inflammatory Bowel Disease is really tough on a number of levels, but one of the hardest pieces is it’s effects on your physical ability and energy. When you are flaring, you have close to zero energy. It is so, so hard to bring yourself to do anything physically challenging because your body is working so hard to keep itself healthy. I did not choose to run a marathon because I thought it would be a *fun* challenge. I chose to run a marathon to prove to myself that UC will not limit me in every aspect of my life. This is why I originally started running 3 years ago; to show UC who’s boss. The NYC Marathon was offered as a race through the Crohn’s and Colitis Foundation’s Team Challenge program—where you fundraise for the Foundation and train for a marathon at the same time. I’ve done several half marathons with this organization before and they are a BLAST. This felt like the perfect way to tackle my first 26.2! I signed up and immediately hyperventilated. I felt like I’d bit off way more than I could chew!
2. What did your training schedule look like, and how long did you train?
My training officially started in June of this year. I ran three days a week, cross-trained twice a week, did strength training one day a week, and took one solid rest day. There are so many different training plans to follow, and I felt like three days of running was plenty for me. My cross training consisted of low-impact activities (I usually flip-flopped between swimming/aqua jogging, the elliptical, and spinning), while my strength training was more focused on full-body movements that built up my core and lower body muscles. For some context: I was returning to running after an injury I sustained last fall—so I needed the extra days of cross-training to make sure I didn’t re-injure myself. Thank goodness for my physical therapist.
3. What was the most difficult part of your training?
The training itself was really, really tough. I felt like I turned down a lot of opportunities over the summer because I was so focused on my training schedule. Then, to add another layer to the crazy, I auditioned and got a part in a musical that was occurring in mid-November. Add weeknight rehearsals on top of marathon training, and I felt like I hadn’t seen my friends or live-in boyfriend in three months. Ack! The time-suck is easily the worst part of marathon training. You have to mindfully plan your time, and this can be kind of a buzz-kill. Spontaneity wasn’t something I could really afford myself this summer and fall. Training is really a part-time job.
4. What were you most nervous about? Advice?
The day of the race was next-level. I was so, so nervous. There was a lot of excitement, too. But mostly nerves. I knew I needed to trust my training, but I was feeling a bit discouraged because of what my time goal was. I wanted to finish around the six-hour mark. Listening to others at the start who’s goals were two hours shorter than mine was tough, I won’t lie to you. It messes with your head a bit and made me wonder if I was really cut out to do this. But, I was excited to deliver a big “eff you” to Ulcerative Colitis and prove to myself that I could finish. I’m happy I went in with that attitude, because the race exceeded my expectations. The crowds were so supportive, and it didn’t matter that I was running with the six-hour pacer. There were so many of us in the back of the pack! I wish that I had seen more stories about slower runners before I attempted this—there are a lot of us! The energy was infectious and for the first 19 miles, it didn’t matter how slow or fast I was. I fed off the New York energy and felt like a total rockstar. Running these larger races can do that to you. It also helped to see family and friends on the course. I would absolutely recommend bringing a hype squad with you, especially for your first race.
5. What was your least favorite part of the marathon? Best part?
I started to have a really tough time right after mile 19. For whatever reason, my hip gave out. I had done all my training runs, I felt healthy going in—it just goes to show that sometimes things don’t go as planned. I tried to run a little bit, but I ended up having to slow down to a full walk (I had been doing a walk/run interval prior to slowing down) and that was really, really disheartening. It slowed my time down significantly, and put me finishing about 45 minutes after I thought I would. The last 7 miles were the worst for me mentally. After doing so well, having to slow down just as you’re about to hit the wall was not a fun feeling and I’m not going to lie—it was a struggle. There were many tears and I considered just giving up. But, all of this emotion was followed by one of my favorite parts of the whole race—at mile 22 a very nice lady in the Bronx offered me a slice of cheese pizza. It was exactly what I needed, and made me smile. I was able to stay positive for rest of the race.
6. Mental or physical- which did you rely on the most for this race?
What everyone says about the mental game of the marathon is true. It doesn’t matter how slow or fast you are, the most important thing is believing you can do this. I bawled when I crossed the finish line. Physically, I was so tired. Mentally, I was spent. It was such a mix of relief/exhaustion/frustration/elation; it took me a while to fully process what I felt after finishing. I was so glad to have finished, to have done it, to have shown my body that I could do it. No matter how hard it was, I did it. UC limits me in a lot of ways, but it didn’t keep me from finishing my first marathon. And for that I was grateful.
7. Did you have a finish time goal in mind? If so, did you meet it?
Try to not have a set finish time in mind. Take it from someone who was told this—it is so, so hard to not go into something like this with a time goal. I had one, and I so wish I hadn’t. I think if I had gone in with the ONLY goal of finishing, I wouldn’t have beat myself up so much after I had to start walking at mile 19. I finished an effing marathon, and my concern for those last 7 miles wasn’t finishing—it was finishing quicker. That wasn’t fair to me, my emotional state, or my body at that point in the race. My biggest regret with this race is that I didn’t just try to enjoy the last couple of miles. I was positive, sure, but I was so anxious. Besides the nice lady offering me pizza, I don’t remember a lot from the last 7 miles. I wish I had.
8. What’s the best advice you can give to someone thinking of running a marathon?
For those of you who are thinking of doing this, I have three pieces of advice: train well, stay healthy, and for the love of all that is holy, try not to go into your first race with an exact finish time in mind. Train well so you feel confident going into the race. It’s ok to miss a run every now and then—I missed a long run about a month before my race and had to shorten it because of a bad cold. This leads to my next piece of advice-STAY HEALTHY. You are not doing your training a favor if you run with the flu. Give your body a break. You know what’s best for you. I’m glad I shortened that longer run with a cold, because I was able to crush my 20-mile training run the following weekend since I wasn’t sick.
Give yourself lots and lots of grace while training for a marathon. LOTS AND LOTS OF GRACE. This is a massive undertaking. Surround yourself by people who support you and encourage you. Make sure you take your full rest day each week. When that’s all said and done, ENJOY THE HECK out of the race and wear your medal for as long as physically possible. I’ve carried mine with me the last week because I’m so proud of myself. Wear your finisher’s gear. Own that pride. You just finished a flippin’ marathon! Will I do another one? Heck yes. But for now, a half marathon is still my favorite distance, and I’m going to give myself a break. I want to focus on staying healthy with UC. I also want to treat myself to a big ole’ plate of cheese fries. Priorities.
HUGE shoutout to Lizzy, for not only taking the time to write this post, but also for making marathons sound far less intimidating and attainable, even for us mere mortal slow-pokes who just wanna make a difference. You are an actual badass.
And now, I’ll dream of that mile 22 New York style pizza all the live-long day…
Is this the fastest year ever for anyone else? Just me? It’s flying by in a hurry!
I realized today that it has been five whole years since my ulcerative colitis diagnosis– woo! So much has changed in the last five years, and today I’m making a post about five obstacles that I have overcome and you can, too! But first, here’s a timeline of all the significant moments of life in and around an ulcerative colitis diagnosis:
-September 2012: Began experiencing severe symptoms (x-rated version: bloody stools 30x daily, loss of appetite, quick weight loss, fatigue, night sweats) -October 2012: Diagnosed with “moderate to severe ulcerative colitis”- began remicade infusions, pain medications, steroids, and mesalamines to get symptoms under control -January 2013: Tried stopping all medications and healing with holistic approach (without doctor’s permission) Stupid, stupid, stupid -April 2013: Hospital stay for dehydration due to symptoms; back on remicade infusions every 8 weeks with steroids. Decided to stop eating red meat, fried food, processed meats, and cheese -December 2013: GRADUATED from The University of Texas at Austin, despite pleas from family to take a medical leave of absence. My GPA even improved after a diagnosis. -March 2014: First post-grad job, a night shift at a Houston hospital. Here is where I learned that I did not want to be a nurse but instead decided to pursue dietetics. I declined my acceptance to a post-bachelor’s nursing program and began scoping out dietetics programs. -June 2014: 2nd colonoscopy revealed active and increased inflammation; diagnosis modified to “Crohn’s disease”; removed from night shift schedule and increased dosage of steroids -March 2015: Registered to run first half-marathon and fundraise for cures to Crohn’s and ulcerative colitis; began talking publicly on social media about disease and realized that I could help encourage people through my journey with a challenging diagnosis. -July 2015: Completed first half-marathon in Sonoma, California after fundraising over $3,900 for Crohn’s and UC research -February 2016: Completed second half-marathon in New Orleans after fundraising over $2,500 for Crohn’s and UC research -May 2016: OFF STEROIDS! -July 2016: ENGAGED! -August-December 2016: “Is remicade working?” -January 2017: WEDDING! -February 2017: 3rd colonoscopy confirms “ulcerative colitis” diagnosis, but with significantly less inflammation -May 2017: REMISSION! -October 2017: 5 years of ulcerative colitis diagnosis
Much has happened in the last five years, and I get bummed when I live through an experience and think, “why didn’t anyone tell me about this?!” which is why I [probably] tend to overshare on social media-you’re welcome. I believe that leaning into the vulnerability of real life challenges and sharing the experience with others helps create a community of empowerment. My life isn’t filled with bright, celestial light and like-it-to-know it worthy outfits (currently sporting dirty high-top converse and yoga pants); my life is peaks and valleys, a balancing act of chasing chocolate chip cookies with probiotic green juice and just trying to stay the eff in remission while I navigate life as a normal twenty-something year old newlywed while remaining a girl boss in organic chemistry. My life is far too much to pretend that it’s instaperfect.
Okay, I’ll stop rambling. Here’s five obstacles that I have overcome with ulcerative colitis:
1. Fear of pain. I remember freaking out as a child every time my mom would take me to the dentist, “Will it hurt?!” Grown adults still ask me this about colonoscopies (No, Debra, you’ll be fine).
I honestly go into procedures/infusions now knowing that at some point I WILL feel discomfort, possibly even pain, and I don’t even care. Pain is temporary, even if it doesn’t feel that way. P.S. The most painful part of the infusion is the end, when the nurse takes the tape off. Think of it as a nice little wax job.
2. Fear of needles. Before UC, I would get so nervous to have by blood drawn annually at my physical check-up. One time I almost passed out. But I realized quickly that I would be seeing a lot of needles after my diagnosis, and I needed to woman-up and get brave. Now I can look at needles all day long- no problem. I don’t even care if the nurse has to try four times before hitting a vein, that looks like hard work anyway. Pro tip: If you ARE afraid of needles, don’t look at the needle when your nurse is trying to thread it, because this triggers a fight-or-fight response from your sympathetic nervous system and your veins vasoconstrict, making life more difficult for you AND your nurse. Also be sure to hydrate well the day BEFORE a procedure so your veins are happy, plump and hydrated.
3. Being my own advocate. If you know me, you know that I have a soft, almost mousy voice, AND I have a resting nice face which means that everyone smiles at me all.the.time. Strangers frequently strike up a conversation, like we’re old friends. My naturally semi-extroverted self is STOKED to have these encounters, but because I LOOK so.damn.friendly. it’s a real challenge for people to take me seriously. When the nurse says “let me check on the order for your medication” I take notes of who I spoke to, when I spoke to them, and then I call back later that day to make sure that homegirl actually checked on the order as promised. People get busy and forget, but my body isn’t going to forget that it needs an infusion to function. If I show up to an infusion appointment only to find out that an order had never been written and insurance had never been contacted for prior-authorization, I WILL craft an email to the head of the infusion center, call my doctor, or show up in person with an order ready for him to fill out and sign. Whatever it takes, I leave my dignity at the door, and I fight. It’s too easy to get lost in our American Healthcare System, so go to bat for yourself. Take good notes, talk to understanding people, and make your case sound.
4. Hair loss. Many, many people experience hair loss; it’s just part of life. I could write an entire post dedicated to “How to make your hair healthy after you’ve been REALLY nutrient depleted and it thins and falls out and breaks off in clumps and makes you cry really hard in the shower but it’s going to be okay, Stacey- IT’S GOING TO BE OKAY. YOU’RE OKAY.” Honestly, hair loss was a tough little challenge for me, and friends and family members were so kind about it “I can hardly notice”. My older sister bought me expensive, old man hair growth shampoo- bless her. But to me, hair loss was an outward expression of how desperately unhealthy I was on the inside, and it was hard to wash my hair knowing that I had balding spots, and I could feel it thinning by the handful. In retrospect, it could’ve been so much worse. I wasn’t bald! Let’s review:
5. Health is comprehensive. Being healthy has been another challenge, but I FINALLY feel like I’m getting it down. In college I stressed and slaved so hard over science courses to get into nursing school, and I sacrificed quality sleep and my diet suffered (but isn’t that the tale of so many college students?)
Post-grad I learned that I felt better when I was physically active, and I started sleeping more. I now feel like I’m balancing sleep, productivity, physical movement, spirituality, and time with people I love better, and each facet is an integral part of overall health. Taking care of myself is getting easier. Three cheers for adulting!
If you’re dealing with a diagnosis, managing a disease, or you just feel like you have a one-way ticket to Struggle City, USA, know that I’m here to help you feel like you’re doing a thing, and you’re doing it better than you think. Life is a continuum of learning, and if we can manage to learn together…well, I’d say we’re doing something right.
Here’s to five years of learning and living! Hope your day is a good one! 🙂
This post is dedicated to those dealing with autoimmune diseases, inflammatory diseases, cancers, the flu, or the common cold. I hope this lifts your spirits!
When I was in college (against my parents’ wishes) I rescued Jaxon.
Jaxon is some sort of maltese/poodle mix if I had to guess (Maltipoo?) and he’s deaf from being left alone outside for the first eleven weeks of his little life. The vet’s best guess is that grass mites actually ate his ear drums- poor, sweet guy! He’s been deaf ever since.
(side note: I’m certain there’s a special place in hell reserved for people who are mean to dogs)
Thankfully, my roommates were all on board to keep Jaxon, so we took turns feeding him nutrients via syringe depending on who was at the apartment from class. Before we knew it he was making his rounds to all the college parties, occasionally even sneaking into classes and workplaces. On more than one occasion I was walking him through West Campus when a complete stranger ran up to us, “Jaxon!!!!” He was quite popular.
In the Fall of 2012 when I became sick and was diagnosed with moderate to severe ulcerative colitis, Jaxon slept on my face while I napped for hours at a time. He slept on my feet while I had symptomatic episodes from the toilet. He stuck his nose beneath the door when I locked myself in the bathroom. He knew I wasn’t feeling great, and he did his best to heal me.
And in a way, I really think Jaxon has succeeded in helping me heal.
Honestly, he’s Mister Independent most of the time. His favorite spot is alone on the back of the couch. But if he knows that I’m not feeling well he sleeps ON my face, and I swear I can hear his concern. When I was worried about symptoms, he was there to try to calm them, letting me pet his soft fur all through the night while he curled up into a tight ball by my stomach.
And now that I’m feeling much better he’s still careful to keep a watchful eye, making sure his people don’t wander too far:
Just knowing my little furballer was at home patiently waiting to greet me after doctor’s appointments, infusions, procedures, or just a regular day made all the difference in the world, and I’m confident that he’s a big reason why I’m able to be the positive patient that I am.
For more, here’s an uplifting article about how pets can improve your health. Do you have any experience with an animal helping you better manage your disease or condition?
To find a pet rescue near you, click here! Hope you consider adopting whether or not you’re ill; pets have a way of changing your life for the better!
Keep moving forward 🙂 I’m rooting for you! (and so are your pets)
Hope your week is off to a great start! Thought I’d update you on some real life events:
We went jet-setting for a weekend…
…to the City of Angels!
We hiked to the Griffith Observatory after a quick breakfast at Roosevelt Cafe where they served copious amounts of avocado slices with my spinach and mushroom omelette, and not skimping on the extra avocado is my love language.
The switchbacks on the trail were NO JOKE, and we got a decent little workout in during our short hike. California is beautiful.
What possessed us to go to L.A. just for the weekend?
The last time our Longhorns competed against the USC Trojans, we were the underdogs for the 2005 Nation Championship at the Rose Bowl. We were the underdogs for this game too, but we lost…
…but it was by one field goal in double-overtime. In case you don’t keep up with football, all you need to know is that my Longhorns have been sucking it uppppp for far too long, so I was quite pleased that we kept up with a top 5 ranked team. Hit me right in the feels.
That night we went for a live show at The Comedy Store on Sunset Blvd (where Robin Williams, Dave Chappelle, Steve Martin, and more got their starts!). Entry was free with minimum purchase of two drinks, so I ordered two hot and fresh out ‘the kitchen chocolate chip cookies and a water, naturally, because I’m seven years old. HILARIOUS. Crude and witty, my favorite combinations. I want to return to at least a dozen more shows.
Then back to our quaint little bnb before a late brunch and a plane home the next day.
Once we returned home reality set in and I had to continue fighting with my doctor’s office and the infusion center to get me scheduled for an infusion.
After returning from L.A. I was about a week past-due for my infusion. I had been sending emails and making calls the week leading up to our trip whenever time at work allowed, but I had no luck getting anyone motivated to send a doctor’s order to my infusion center.
Basically my infusion center discontinued my drug, Remicade. “We no longer carry that drug because it is too expensive.” But no one bothered to let me know BEFORE my infusion, so I had to find out once I actually arrived to get infused and there was no order written for the new drug.
So after enough back and forth communication to make me lose my mind, I showed up to my doctor’s office with an order. “I’m not leaving this office until he signs this order.” All he needed to do was fill it out. DONE!
…But he didn’t fill it out correctly. To make a long story short it took nearly two weeks after my scheduled infusion time to get everything sorted, but finally I GOT INFUSED!
I have fought for over five years to reach remission. I’m finally here, and I’ll be damned if I begin having symptoms again because of a flawed healthcare system and people who won’t do their jobs. Being your own health advocate requires that you raise hell from time to time as if your life depends on it…because it does, friends. It really does.
But I must give a shoutout to my infusion nurse. She was a heaven-sent angel.
The rest of this weekend was spent napping (because infusions = the best naps evahhh), getting pizza (because infusion days always call for pizza)…
…and (sour) beer…
… and more football at quaint neighborhood bars
(if you’ve never visited OKC, you should. It’s tremendously underrated).
Hope everyone has a great week. Hang in there and keep fighting, all my fellow IBD and/or chronic disease warriors! You life is worth it.